Sunday, June 21, 2009

The "Wonders" of Modern Medicine Make Me Wonder

I know, I know. It has been forever. We've been kind of busy. It's, ironically, always the times when you have a lot going on that you don't have any time to tell anyone about it.

We went to Albuquerque the other day to have an ultrasound to check up on the new baby's kidneys. He has had pyelectasis (too much fluid in the kidneys, probably caused by blockage) at least since about 17 weeks gestation. They've had me go to Albuquerque to monitor the progress so we know what we're dealing with when the baby is born. It's a very common problem, accounting for about half of all anomolies found on prenatal ultrasound. Anyway, I could go on and on about this--and knowing me, I just might--but it was NOT a good experience, to say the least.

Let me begin by saying that at 17 weeks I had my first high-res ultrasound and they found the thing with the kidney, and the doctor started talking about "soft markers" for Down syndrome and wanted me to do an amniocentesis. The only reason they keep mentioning Down syndrome is because I have a sister with Down syndrome, but it was just one of those chance things and I have no more genetic predisposition than anyone else my age to have a child with Down syndrome. Like it would matter to me anyway. Then he told me that 17 weeks was a little early and the amniotic sac hadn't fully attached yet, and that there was a 95% chance that the "fetus" would survive the procedure. Like I'm too stupid to figure out that that means that there was a 1 in 20 chance that my baby would DIE just to satisfy HIS curiosity about whether my baby has Down syndrome. I told him to forget it. Now it has "REFUSED AMNIO" stamped all over my chart. At least they aren't my real doctors.

So, this is the background of what I'm dealing with. Oh, and he also "diagnosed" me with preeclampsia at my first birth a year and a half ex post facto, and when I asked him how he could be so sure when he wasn't even there and didn't know anything about me at the time and my own doctor didn't give me that diagnosis, he explained it by saying that doctors at the hospital where we live are "very nice" but they practice "stick medicine." Yep, he actually said that. I went back to my doctor and told him the whole thing and that I wasn't seeing that doctor again.

So, this last time I saw the other joker's associate, but he turned out to be just as bad if not worse. They took pictures of the kidneys, and one had resolved itself, but the other had gotten worse. He came into the room after his ultrasonographer did the initial look-see, and the first thing he said is "We've got to save that kidney!" as if it were about to explode if he didn't come to save the day. He started rambling on about tests that had to be run and going to deliver there, and I said I really didn't want to deliver there. He said, and I quote, "Well, this baby's going to be born here whether you like it or not." Buzz! Wrong answer, dude. Sorry. I asked him if the baby had to be delivered early, and he said no, nothing like that. So I said if he can wait six weeks for the baby to grow to full term, he can wait two or three more days for us to drive down there under our own power to run whatever tests needed to be done on their fancy equipment.

I was not going to be at the mercy of a hospital that looks and runs like an airport, complete with terminals, and a doctor who treats me like a uterus, my baby like a fetus, and no doubt newborns like neonates. Oh, and husbands like complete nonentities. Fortunately, our doctor told him the exact same thing before we even got home from our appointment. And that's another thing. It's a 90-mile drive to Albuquerque from our house. As if it would be better for us to drive all the way down there to deliver the baby after I go into labor than to just drive 15 miles to the local hospital.

So we're having the baby here. The only problem is that he is breech, and if he doesn't turn by the time I go into labor they will have to do a c-section. And thanks to some meddling lawyer, they can't do VBACs at this hospital anymore right now, though our doctor says they're working on fighting that and they hope to have it changed soon. He said he used to deliver vaginally after c-sections all the time, until this lawyer thought that he knew safe medical practice better than the doctors and told them they couldn't do it anymore or they'd be faced with a malpractice suit. So pray for me that the baby will turn, because we plan to have more children after this, and I don't want multiple c-sections, and I CERTAINLY don't want to have to go to Albuquerque to do it. I hate them there.

5 comments:

Analei said...

I totally agree with you about prenatal testing. I refuse it every time they ask, not only because it endangers the fetus, but also because it doesn't matter to me if my baby has a defect. I'd still carry it to term and keep it and raise it to the best of my ability and love it just as much as I love my normal children. Someone told me recently that 95% of down syndrome babies are aborted. Isn't that sick? So good job putting your foot down. Did you have a c-section with your first baby?

O'Neil Family said...

I didn't have a c-section with the first, but I don't want to have one with this one because we plan to have more kids, hopefully locally. So they don't have a problem with my having a normal birth as long as he isn't breech anymore when I go into labor. He's moving around a lot. I'll find out on Friday if he has turned yet.

Stephen and Gabrielle said...

So sorry to hear that things have been stressful. Congrats on being able to stick up for yourself, though. And I totally understand about the reservations about prenatal testing. It sounds like you got the worst examples of doctors imaginable (except for your ob, he sounds great). And if it makes you feel any better, my cousin's baby was born in January with that very kidney condition and he has outgrown it (which they were told from the get go is pretty normal). I hope he turns, so that you don't have to do a section. Maybe they can try an external version? Anything is worth a shot to avoid having to fight for a VBAC (lawyers, ugh, don't get me started on that one!)

O'Neil Family said...

I know! My ob--which is actually our family doctor--said exactly the same thing. He said that it is actually a pretty mild case, despite what the "specialists" were saying, and that he delivered a baby recently that had just the same thing with the same severity, and he, of course, grew out of it. I am sick of "big city" doctors who think that they're smarter and can tell everyone what to do just because they're in a big city. As if IQ is proportional to the population of the city you live in--and as if Albuquerque is even a very big city! It has something like 500,000 people, which is biggish, but nothing like San Diego, LA, or Salt Lake--other cities I've been in and around. I think these doctors are just too big for their britches and like to play with their toys too much.

Stephen and Gabrielle said...

Well, what is the point of having those toys, unless you get to play with them, right;)